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Mountains Move Me: Conquering RA fatigue and depression by celebrating times...
On the top of Mt. Belford, a Colorado 14er. The day included 6,000 feet of elevation gain and more than 9 miles of high altitude hiking. The hardest thing for people to understand about RA is the ebbs...
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Shake It Off: Life with Tremors
Mine hit me right around the time that my Raynaud’s decided to show it’s full colors (no really, my hands were fantastic colors of red, white and purple). Why? Probably because I was 14 and my...
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Invisible Illness Week: 30 Things You May Not Know…
Rude Awakening posted some great answers to the “30 Things You May Not Know About My Invisible Illness” questionaire in honor of Invisible Illness week: Invisible Illness Week: 30 Things You May Not...
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Hope, Acceptance and a New Normal
Oh man, I’ve been neglecting this blog! Sorry guys. There’s nothing like that three month rheumatologist appointment to remind me to get writing! I’ve been thinking a lot about the journey I’ve been...
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‘Tis the Season to be Screwed by Insurance
Ah, late December. A time of beautiful lights, giving, and the great health insurance scramble. As co-founder of my company, I’m lucky enough to have a huge impact on choosing the health insurance we...
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Why Enbrel Support is Like Santa
You may recall my last post when I was reeling about United Healthcare’s decision to raise Enbrel from a tier 2 drug ($30 per month copay) to tier 4 ($250 per month). Right before Christmas. Well, if...
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Magical Thinking: The Lure of New Shoes, Sore Throat Elixirs & Marathons
Magical Thinking #1: I will find the perfect shoe Let’s start with my favorite magical thinking first: somewhere out there, exists a perfect shoe for us RAers. I know I’m lying to myself with this one,...
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An RA Gift Exchange
Want to mail a little hope? RA Guy is organizing an RA hope care package exchange. I think this is an awesome, beautiful idea (I’m all signed up). Give and receive a little hope by signing up here....
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The Curative Powers of Tattoos
Since getting diagnosed with RA, I’ve gotten two, carefully crafted tattoos. They are reminders to have hope, be positive, dream big, and stay strong. There’s been stories out there about how healing...
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Arthritis PSA for Cat Lovers
As a cat owner who uses the occasional muscle-relief lotion to combat arthritis pain, I was upset to read this article:...
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But You’re Better, Right?
First off, my apologies for being off the radar for, well, months. My work has been busy and I’ve been trying to finish up my second novel. (If anyone has any interest in checking out my first book,...
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Choosing to Become a Parent with a Chronic Disease
I was diagnosed with Rheumatoid Arthritis or Rheumatoid Autoimmune Disease when I was 29. It’s an awkward age to be told you have a chronic disease. There was so much I hadn’t yet accomplished. At the...
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Have You Tried Fish Oil?
I live in a city that embraces naturopaths, acupuncture and supplements. Anytime I tell anyone I have Rheumatoid Arthritis, they immediately follow with diet or supplement advice. Fish oil cures that,...
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Design Thinking: Or Why Life with RA Forces You to be Creative
Design Thinking: Last night I went to a talk on Design Thinking. This is marketing/business jargon for approaching product design from a user’s point of view. The speaker encouraged everyone to go out...
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RA & The Convoluted Path to Pregnancy
I’m finally sitting down to write a review of Arthritis, Pregnancy and the Path to Parenthood, by Suzie Edward May. Now this little book is only 183 well-spaced pages and I started reading it way back...
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RA, Fertility & Freezing Eggs
Does rheumatoid arthritis effect fertility? My fertility doctor thinks so, citing this study, but my rheumatologist disagrees. This lack on consensus means women aren’t counseled on this possibility...
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Eggs Over Easy
So, this is how it was supposed to go! Two painless weeks of hormones and 9 mature eggs now in the freezer. After my canceled round a couple of months ago, I was feeling pretty discouraged. I took a...
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Embrace Yourself
Here’s a challenge: love your body. I mean it. Dance in front of a mirror and tell yourself your beautiful. Love your tall, your short, your skinny, your fat. Love your freckles, your dimples, your...
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Back Here Again
“I just don’t know how much pain I’m expected to endure,” I confided to my friend. And so, I had to admit to myself that I’ve been living with more pain, more morning stiffness, more burning sensations...
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My Month on the AIP Diet
If you live with a chronic disease, you’ve been told some variation of “you can cure your disease if you eat this or don’t eat this”. I’ve been told to eat ginger, turmeric, be vegan, go paleo, cut...
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